There was no hesitation on the canvases, no timidity. A couple of authors who were scheduled to have events at the bookstore had pulled out. This was not a two-hour journey. Sooki was coming as a patient, and more than a little of the work was going to fall to him. Recurrent pancreatic cancer kept me focused on the present moment. She painted as fast as she could get her canvases prepped, berating herself for falling asleep in the afternoons. I went to the grocery store and piled up the cart. Dear gave way to Dearest. Could we talk about it sometime? I pushed my face into his shoulder, apologizing. It's about Patchett's unexpected friendship with Sooki Raphael, Tom Hanks' personal assistant, which developed when Raphael underwent chemo treatment while living at Patchett's house in Nashville at the start of the pandemic. I cant always be the one whos taking everything.. There are people here all the time. She asked whether that was cheating and was told not to worry about it. When her white count was too low to get treatment, she would run up and down the stairs at the hospital, down from the seventh floor to the first and back up again, over and over, and then get retested. Later, she asked him if hed be willing to record the audiobook of her latest novel, The Dutch House. When he agreed, she began a protracted email exchange with Raphael to work out the details. Astonishing to come across such a friendship at this point in life. When Patchett connected with Tom Hanks, who is a fellow author and book lover (among other things! Patchett, co-owner of Parnassus Books in Nashville, has an essay collection revolving around the story of her friendship with Sooki Raphael, Tom Hanks's assistant. Outside the rain was dark and lashing. She was checking email or trying to make notes. She had been in the house for only a few minutes; there hadnt been enough time to lose anything. He recommends books and asks for recommendations. She brought her paintings upstairs to show us: a person who was too shy to say good night most nights was happy for us to see her work. Id seen her work in action. Moving Forward after Losing a Loved One to Cancer. She was welcome. Everything was lit up bright, the table set. Although his superhero mother will not get to see him play in the NFL, Farley will take many lessons he learned from her and apply them to whatever challenges he faces in life moving forward. It was enough just to be together in all that darkness. How was that possible? Everything filled in. Raphael turned to art during a tumultuous time in her life and created works that will continue to be enjoyed long after her passing. There was my grandmother, my father. They would flow on in papery layers, in a creation act. Thats like the building blocks of my, of my life, Farley told SurvivorNet. A year and a half had passed since I had picked up his book in my office, and this was where it had taken me: Tom Hanks was willing to read The Dutch House. Read More. Karl had started flying in Mississippi when he was ten. We were in this together. She loved her friends, and supported them with all she had to give. The next morning, we went to the bookstore early and picked out presents for everyone in her family. Im sorry to bother you, Sooki said, looking around. She produced a film about her fathers work teaching children with special needs. And this led to you meeting Sooki. When Im putting together a novel, I leave all the doors and windows open so the characters can come in and just as easily leave. Something happened to it while I was in the shower., She shook her head. And there I was, going nowhere. Or I should say the boundaries you think are there tend to fall away. There is a possibility that a $25 painting acquired in 1899 was an original Raphael worth $26 million. You two go and Ill have dinner ready by the time you get back. It was the practical solution, and so they left. "Primarily and in her soul she was an artist." Of course we could. She taught ceramics classes. Travel while staying at home! They arrive daily in padded mailersnovels, memoirs, essays, historiesthings I never requested and in most cases will never get to. I had met Sooki, after all. assistant (as Susan 'Sooki' Raphael, Mr. Hanks) 2012 Game Change assistant (Mr. Hanks) TV Movie 2012 Larry Crowne assistant (Mr. Hanks) 2011 Big Love assistant: Tom Hanks assistant: Mr. Hanks TV Series 2006-2011 48 episodes The Pacific assistant: Mr. Hanks (Mr. Hanks) TV Mini Series 2010 7 episodes Where the Wild Things Are assistant (Tom Hanks) Most days I went to work at Parnassus for several hours, filling boxes. Our newsletter vital information, hope, and healing, delivered weekly. These months of exercise would save me. She became interested in urban animals. She and Ken put what mattered most in the car and started driving, waiting to see which way the wind would shift the wall of flame. My mother was a pilot, Sooki said, and there she was, suddenly at ease. They were flying out at the end of May. Pay attention every minute. It was a minor footnote considering everything I got from Karl, but still, the warmth of it, the love: to walk in the door after a long two days and see that someone had imagined that I might be hungry knocked me sideways. . When I asked her how she was feeling, she might admit to being a little tired or having a bit of a stomachache, nothing more than that. lives. Would he think to tell me if something had happened? It becomes the woods. He was not one to miss a workout and neither was I. Id practiced kundalini devotedly for years and then drifted, picking up other things, and while Id stuck with the short class, I had amassed no end of DVDs. You have a pretty head, I told Sooki when the job was done. She made props for TV shows. I laughed. Look at this.. Books are fun! Of course we would exercise together; it was good for both of us. And then pancreatic cancer. Can you imagine Tom sitting at home saying, I cant believe Sooki used my connections to get into a clinical trial in Nashville?, No, of course not, Im just telling you. I had spent my professional life looking at my calendar, counting down the days I had left at home. While we pored over every detail of dinner (Sooki revealed herself to be a great cook), we didnt talk about her family. Sooki was desperate to be helpful. Sparky Considers a Squirrel, Nashville 2020. Blind Boys of Alabama with Special Guest TBA. MAILORDER / QUESTIONS: 1.888.266.4370 8:00 AM - 4:00 PM MON-FRI NURSERY PHONE: (510) 215-3301 Our Plants. She told me how lovely it had been to lay down the burden of her own vigilance. feb. 14, 2020: PSJust to be clear, I ran all this by Karl first, who said, I favor having her here. (Very Karl.). Unlike so many other small businesses, we had the means to pivot. He's really interesting. We talked and then we didnt. She looked at me. Wednesday was chemo. If it werent for me, youd be walking around with a penguin on your head right now.. I must have dropped it. But before her passing, she had a long career in the film industry which included her time spent as Hanks assistant before indulging her passion for painting. Who is tom Hanks assistant? She and Tom would walk in the desert in the early mornings and she would feed him lines from a script while he memorized his part, cobras skating through the dust just in front of them. I emailed him at work. She has opinions about my life. Karl found a giant bright-blue tarp in the garage and Sooki spread it over the floor and table downstairs, setting herself up to paint. After dinner that night, Sooki and I sat on the couch and tried to watch a movie, but her phone on its leash began to ding and ding and ding, insisting on her attention. She had a son and a daughter-in-law with two children who lived south of her and a daughter and son-in-law who had recently moved north. I was starting to understand that what she needed might have been color rather than conversation, breath rather than words. Stranded at home, Karl studied to get his instrument rating as a pilot. Sooki of the magnificent coat. Two days later, I sent an endorsement to the editor. We started looking up articles on the Johns Hopkins website. Vivaldi, Vivaldi, Vivaldithats how it starts. Karl was home from work when we got to the house, and he and I showed Sooki around. It was her only chance of getting back safely anytime soon. We were still at the beginning then. We had been in some scrapes before. There is nothing more interesting than time: the days that are endless, the days that get away. When Ann Patchett decides to try medicinal hallucinogens to accompany her ailing friend on a spiritual journey (also to alleviate the pain caused by chemotherapy), he gives them space. Called These Precious Days(Harper, 320 pp., out of four, out Tuesday) after a line from the pop standard September Song, memorably recorded by another Nashville legend, Willie Nelson, the essay lends its melancholy title to a new collection of essays by one of Americas premier writers. That was what we had to hold on to, and so we held on. It had been happening for a while. Im dying, my friend had said to me. No one had ever been so welcome. Wait and see. A post shared by Rita Wilson (@ritawilson), [Sooki] was so many things, Wilson wrote. I went upstairs to get the scissors out of my sewing basket. He has me repeat my name, birth date and area of radiation each time before I enter the room. What about your sisters? I asked. Karls friend Dr.Bendell knew Sookis oncologist at UCLA and her oncologist at Stanford and her surgeon at Duke. I was the one who talked you out of the fifty pounds of dry ice.. Karls cousin was visiting from New Mexico, sleeping in the other guest room. In the case of The Dutch House, Id started to think about a poor woman who suddenly became rich, and because she was unable to deal with the change in circumstances, she left her family and went to India to follow a guru. Solo exhibition of paintings by Sooki Raphael on view at ROSEGALLERY. She would pour color into my inbox for a while and then be gone again. I think about you often and hope for the best. Tom Hanks needs a favor? I had pictured her going through this alone, a conclusion I reached on account of a lack of information and a florid imagination. There was an important piece of information that hadnt been made clear to Sooki when she came to Nashville; it was that, unlike the FOLFIRINOX, which had carved twenty pounds off her over twenty-four weeks, this course of chemotherapy had no end. Seventy percent of participants rated it among the most personally meaningful and spiritually significant experiences of their lives. He rolled his eyes, but he kept reading. She loved Dr.Bendell. The chemo, the clinical trial, the yoga and the vegetables, the prayers of nuns and all the time to paintwhat if it added up to something? I no longer needed the protection. I thought some nights my back would snap. We talked about art. No events scheduled for January 20, 2023. Was this what COVID-19 felt like? feb. 15, 2020: I will try to keep this quick as I know you have many fish to fry. Still, wasnt it worth mentioning? Patchetts good intentions to help a stranger she took a liking to cant be separated from her self-promoting instincts to make a story worth writing about. I wanted to know what her worst fear about staying here was, and after a pause she told me she was a vegetarian. The sky had turned a tenacious gray, the rain sheeting sideways. Am I the person youre talking to, or are you talking to someone else downstairs late at night? I sat at my desk for a long time, trying to make sense of this: time when there was no time, and talent all out of proportion to the task. Much love. I wanted to go to bed and read. It was Memorial Day, after all. She's allowed to live in the world, and not be one thing. She worked for Tom Hanks. Miraculously, after a spate of vigorous exercise there would be enough white cells to slip her in just under the wire. Its just. She stopped. She said we could expect to be in the thick of things for an hour and a half, maybe two hours, with some residual effects for another three or four hours after that. Twenty-five people died in Nashville the night of those tornadoes. Never. Sooki had been working for the bat squad in New York when a bicentennial parade passed in front of the Bureau of Animal Affairs. As soon as the roaring thunder of approval eased, he pointed at me and said, She doesnt have any questions.. I was grateful. Once she gets here and sees the way things are, shell be fine.. I caught an early flight home. Audience questions arrived on index cards, were read aloud and sorted through. A neighbor of the Patchett's described Sooki as a saint. I cant tell you how grateful I am. The caps were in the Mary Poppins suitcase, along with her paints and easel, the large blanket she had brought us as a gift, and her extensive wardrobe. A month later, I still hadnt seen all the clothes she had brought with her, and I never saw the cold caps. She brought her paintings upstairs to show us: a person who was too shy to say good night most nights was happy for us to see her work. You should come back to the music, she said sympathetically. Its okay for us to be in the same room, Sooki said, a statement rather than a question. Sooki had strength and courage. I chart your emotional life.. I waited but nothing came next. On this summer night in 2017, I picked up a collection called Uncommon Type, by Tom Hanks. Direct flights to Los Angeles had been suspended, and even if shed wanted to fly to Dallas to wait and see whether the connecting flight would be canceled (because thats what happened now), her weekly blood draws underscored the fact that she scarcely had enough white cells to qualify for chemo, much less protect her from a pandemic while on a commercial flight. And when I was young, the two things that were unbelievably expensive were long-distance phone calls and plane tickets. I was sorry for what Id done to him, by which I meant poisoning myself. And I found maybe five other kids who had done the same thing and decided that I was going to make Thanksgiving dinner. Sparky had crawled onto my chest and gone to sleep. "The press release is about to go out." I sat there and watched her read, waiting for something more, something that explained it. It was the last hour of a long day. The truth was that I had no idea how Sooki was doing, and I had no confidence that she would tell me. How did she have twenty-eight vials of blood in her? I had no idea whether it was a good idea, but she could. She said she didnt know what she was going to do. I had been afraid of how the story would end. A week later, Tom Hanks started recording The Dutch House at a studio in Los Angeles. No, Im fine. There were pictures of her at twenty-two, beautiful and dark-eyed, standing on somebodys desk in little canvas tennis shoes, her gloved hands holding a bat and a net. Then, we ended up staying in touch very lightly - you know, an email every month or two. Thats worth everything.. Plant medicine, they called it now. They reviewed her records together. There is another guest suite on the main floor and we live on the top floor. Are you sick?. Need to create a login? Thought-provoking commentary and opinion on politics, books and the arts. I didnt know how the story would end. I am now sitting at the airport waiting to catch a plane to my next opinion, at Sloan Kettering in NY. The plan was that she would go home to Los Angeles during her weeks off, and once UCLA started the trial, she could go home permanently. We had found each other and we would not be lost. I could see what the cancers given me. It was late and Id just finished the novel Id been reading. But for you, there was also a vapor that would come in and fill in any gap that was left in the process, and I realized, Oh, this is what is special here and so essentially Ann. There was a completeness. As the co-owner of a bookstore, I do this sort of thing, and while I mostly do it in Nashville, where I live, there have certainly been requests interesting enough to get me on a plane. Hanks and his wife, Rita Wilson, also recognized the rare talent that was Raphael. These precious days Ill spend with you, I sang in my head. I was copied on a barrage of emails I had no business reading, reports of molecular profiling, adenocarcinoma, tumor tissue for genetic analysis. The cherry blossoms hung on forever. In a heartfelt tribute after she died, Wilson told followers about the lovely artist that was her dear friend and shared some of her vibrant paintings. Sooki came to Nashville and stayed in one place, no more movie stars, no more trips to Morocco and Tan-Tan. It was as if 98percent of her hair had fallen out, but somehow in the process, it had felted. He had a program where he taught kids with Down syndrome and autism how to ride bikes., As it turned out, Sooki had done a lot of things. To say that Patchett was impressed is an understatement. I had thought I was writing a novel about a woman who had left her family to go serve the poor in India. I hoped he would ask me to join them. Which she did. I asked him how he would feel about my extending an invitation to stay. OVERVIEW EXHIBITIONS BIOGRAPHY Past Exhibitions. Everyone was wide awake, waiting up to see if the world was going to end. RoseGallery is pleased to present These Precious Days, a solo exhibition of paintings by Sooki Raphael, on view from 10 April until 10 May, 2021. I came back from Virginia and took Sooki to see the daffodils at the botanical garden, but we were too early. Im doing the best I can to feel beautiful in this new body.. Im a vegetarian. I had gotten up in the dark to make stacks of sandwiches. It seemed we had just driven through the U.S. epicenter of the coronavirus. I need to go home, she would say, like home was another place she could walk to. Its important to think about your intentions before you start, my friend told us. 2,560 Followers, 85 Following, 25 Posts - See Instagram photos and videos from Sooki Raphael (@sookiraphaelartist) There was no reason for her to tell me this. PGVs (pathogenic germline variants) are changes in reproductive cells (sperm or egg) that become part of the DNA in the cells of the offspring. She learned to solo an airplane before she learned to drive. The most important human qualities were being applied to this form. But a few months later, I got an email from Tom Hanks early in the morning. Im sure these words cant adequately convey what was such a radiant message, but it stayed with me so strongly as I woke up during the night, and thats the best I can describe it. You think youre getting chemo three Wednesdays a month but really its a test to measure the effectiveness of kundalini yoga and kohlrabi. I had signed up for a farm-share box, and every week we were overwhelmed with pounds of mysterious vegetables. It was over. Its HARD. She looked startled. Really? PATCHETT: I really, really appreciate that. My death. We had been together for the duration of this new world. Sooki had been a marathoner, though her best event was a 10K trail run. I surely would go ahead with the dates I had scheduled in the States. Heres to more time to explore color and enjoy all the peoplelike youwho make life colorful. We at Harper's Magazine are deeply saddened by the loss of our former contributing editor Barry Lopez (1945-2020), who died on Christmas Day.Over the course of four decades, Barry wrote more than a dozen works of criticism, reportage, and memoir for the magazine, all of them informed by the combination of wonder and moral urgency that made him one of America's most beloved . Wednesdays chemo hit Sooki on Friday afternoon. I didnt know what I would have done in her place, but I imagined that upon getting the news of recurrent pancreatic cancer I would go see my lawyer and settle up my tab with the house. Even if it wasnt a perfect plan, it was better than doing nothing. This wasnt out of the ordinary for me, as Im sure it wasnt for her. Please Scream Inside Your Heart:New book relives chaotic 2020 news cycle in a good way, She states it quite plainly in the introduction, Essays Dont Die, a short piece that describes the process she used to select the essays for this book, most of which appeared in slightly different form in other publications. He read several articles while I waited. A man answered. So what are the deadlines, days needed, etc? We were early, they were late. Surely there would be a story there for one of us. Maybe its all the chemicals I have in me already. He watched classes on his computer and worked through calculus problems at the dining-room table. It would have to be for this story to continue. One morning Sooki had coffee with Sister Nena and me before she went to a yoga class across the street from the restaurant we went to for breakfast. When they called, she asked them all the right questions. Ive got to take care of my nun, I told him. She gave us a giant furry blanket that I loved. PATCHETT: Right. I told her as much. Its an honor, really. The very fact of her existence in our house kept me on track. They sailed to St.Barts in a beautiful old wooden boat named Christmas. With many creative endeavors - from clothing to ceramics to a long career in the film industry Raphael has contributed to numerous projects, busily attending to the arts through a multiplicity of avenues. UCLA would fold her into their trial, everything seamless. Death, I said. Id love to do your audio book! My blue torso, the mold made on the day I came in for my fitting and tattoos, is already on the radiation bed and I need to bare my abdomen and slide onto the table so they can line up the laser beams with all my tattoos and red-sharpie xs before they cover me with a warmed flannel sheet. Go together. Karl has never once complained. If I knew nothing about Sooki before she arrived, I knew very little more three weeks later when we were spending all of our days together. Except it was Sooki, and I liked her very much.. They had turned off the heat PATCHETT: Or they turned it down to whatever level would keep the pipes from freezing. You always feel this way on Friday., Thats what Im here for, I said. When she came upstairs ready to go she was wearing the black-velvet coat with the peonies on it. I want to meet Tom Hanks, she said. Had I known she had a husband, might I have assumed that she was taken care of and so not followed the story as closely? Up and down the street the lights clicked off; our house went dark. Most recently, she had a solo exhibition of paintings at ROSEGALLERY called These Precious Days, just like Patchetts piece. And what about the women who cleaned that house, who fixed those children their dinner? Yeah. Her CA 19-9 was 170, down from 2,100 when she arrived in February. The essay, "These Precious Days," chronicles Patchett's meeting with actor Tom Hanks, who was promoting his first book of short stories, Uncommon Type, and had asked Patchett for an endorsement. Sooki had downloaded it. Karl is a doctor, but Sooki had been treated at UCLA, Stanford, Duke, and Memorial Sloan Kettering. But you write that what you loved was finding someone who sees you as your best and most complete self and that she did that for you, and you think you did that for her. 30, 2019: My kindness comes from sincerely wanting this recording to happen. He claims our lives are better for all the people I bring into the house. UCLA had plans to start the same clinical trial that was up and running in Nashville, but not for another month or two, a unit of time that could not be lost to waiting. Use this bar to access information about the steps in your cancer journey. Surely there was a piece of this story she was leaving out because the next thing I knew shed sailed off with them. RoseGallery featured Sooki Raphael's work in the past. With many creative endeavors - from clothing to ceramics to a long career in the film industry Raphael has contributed to numerous projects, busily attending to the arts . But by the time Karl and Sooki left for the airport she was happy. He thanks me for it. And certainly, I have made some close friendships as an adult, but there is a quality of youthful friendship that is based on wasting time together, having just whole days where you're not making plans, you're not entertaining one another. Pay A weekly email taking aim at the relentless absurdity of the 24-hour news cycle. She started a kids clothing business. Even as Sookis white count continued to hover in the neighborhood of nonexistent, her CA 19-9 cancer marker number (that unreliable indicator we relied on) was dropping. And despite the fact that cancer has essentially been her whole life, Cuozzo has recognized herself as a lot more than a diagnosis by focusing on her life as a mother and an artist. He holds a kind of medical currency, saved then spent, and when needed, he can marshal all necessary parties into immediate action, bringing them together so fast that whatever needs to happen can happen yesterday. You had it here all this time? The coat wasnt the way I had remembered it. These Precious Days by Ann Patchett reviewed. Should I have woken them up and made them come down to the basement? This wasnt about an inability to get good medical care; it was about not being able to find a clinical trial that both matched her cancer and could accept her immediately. Patchett is part-owner of a bookstore (Parnassus), has a three-story house and a husband whos a longtime physician at the First Clinic in Nashville. FOLFIRINOX had also given her a profound aversion to cold. Im self-conscious about being in the way, especially if Im not at my best through chemo. I was already years ahead of myself, thinking of all the good Tom Hanks could do for independent bookstores. She apologized for her late response, saying that shed had a medical procedure and hadnt been in the office. Its supposed to keep your hair from falling out, she said. Parents, siblings and children of someone with pancreatic cancer are considered high risk for developing the disease because they are first-degree relatives of the individual. PATCHETT: Yeah. I leaned over to look at her phone. But in her post, Wilson referred to her as the one thing she was destined to be: an artist. These are the precious days of the title. But I was a freshman at Sarah Lawrence, and my cousins had brought me home for Halloween my first year of college because I was really homesick. I pulled up my eye mask. She once caught bats for the City of New York. Register, Tom Hanks and Rita Wilsons Assistant Died of Pancreatic Cancer. And anyway, UCLA had suspended its plans to start the clinical trial for recurrent pancreatic cancer. But wasnt there also a scenario in which she didnt die? . Get help here. Click, click, click. The risk was too high. More news about planes: friends of mine in Nashville who knew what was going on with Sooki, and who have a house in California and a jet that takes them there, the nicest possible friends, offered her a ride home. The trees were down but not the houses, and the trees, from what I could see, hadnt fallen on the houses. I tugged at Karl and the three of us went downstairs with the dog. , 2019: my kindness comes from sincerely wanting this recording to happen worry! Have dinner ready by the time you get back more trips to Morocco Tan-Tan... An email every month or two she would pour color into my inbox for farm-share! 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Bright, the Dutch house at a studio in Los Angeles had suspended its plans to the! My kindness comes from sincerely wanting this recording to happen being in the States another guest suite on the floor. On his computer and worked through calculus problems at the relentless absurdity of the coronavirus treated at UCLA and oncologist... Care of my sewing basket but somehow in the way I had her... Pictured her going through this alone, a statement rather than words to. People I bring into the house for only a few sooki raphael tom hanks assistant later, I sang in head. Youwho make life colorful hour of a long day off with them okay for us be.
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